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Welcome to the message board. Please read the Message Board Terms of Use before participating. We hope you will share your experiences with NES as well as your thoughts and questions. Because information about NES and how to treat them is not widely available, it is our hope that those with NES and their family members can provide much needed insights that all can benefit from. It is our hope that those researchers and physicians who are working on NES will see the information here and it will help them in their efforts. We invite them also to post helpful information.

 

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Nonepileptic Seizures Message Board Search  

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by Site Admin
   Notice from The Nonepileptic Seizure Organization

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Hello everyone. Just a quick note that we take your safety and privacy very seriously. We monitor this message board closely to keep it a very safe place to be. Only messages authored by "Site Admin" are by individuals who are officially connected ...
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by Booann
New here ..b/f has had these for yearssssssss

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Hi,
I just found your site last night. My boyfriend has NES and has suffered from it since he was 21.. he's now 48. From what I've read he's on ALL the wrong med's. Some he's been on since the beginning including anti seizure meds. Such as Tegretol ...
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by angel_warrior
Where do i begin

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Hello every one - firstly thank you for making this site- i wish there was more support in the UK where i'm from.
Also any one with this must be a real strong person you have obvoiusly had deep trauma and got through it but ...
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by adamten
chances with removing non-epileptic seizures

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Message Board
This may seem irrelevant, but is not to me. I'm am trying to decrease, or eliminate my non-epileptic seizures. I was just told I will need medication to do so.
Briefly, I  very nearly drowned  ...
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by lynnpratt
Psycogenic non epileptic seizures

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Hi,

I am new to this website, I also am new to the NES and how to deal with it.  I don't take outside environmental stimuli very well such as a lot of loud noise or even stress related conditions for this makes matters worse for me.

My husband ...
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by idifiles08
question

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hi, I'm new to the site. Can somebody tell me their systoms? do you first start starring off into space or do you start jerking, or do you just black out?

 

What meds have they tried on you?

 

thx,

...
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by tiff15
New here.

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Ive had Psuedoseizures (or 'leafs' as my therapist and I call them) for about 10 years now. although Ive learned alot, sometimes I still feel so alone...kinda like a alien. Im glad to see that theres a site where people can go and talk about this...disorder. ...
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by mjcandzack
At Wits End

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I wish I knew where to begin.  My wife of 20 years has suffered PNES for all 20 of those years plus so